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Just some thoughts….

Its ok to get angry, but its not ok to reside inside of it. Put simply, anger is the easy way out and deserves no honor. Stewing in it gives you a false sense of righteousness that — to you — justifies your own unfair attitude, behaviors, and unwillingness to work out a resolution. It gives you an excuse to not try… to not grow as an individual, to not bend.

There is peace found in simply understanding that life is not going to go the way you planned period. Life’s value is less about what happens to you, and more about what actions you take, how you adapt, how you react. Taking responsibility for yourself – being honest about your own motives – your actions, these are the first steps in not being so lost. Guard yourself against dramatization, because it muddies the water, and often makes you focus on the wrong questions. It makes you take pride in the wrong things. Your level of pride in your own perfection in any situation is a red flag that you plain aren’t being reflective enough.

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    Affix your own mask first….

When you get on an airplane, its one of the first things they tell you. In the event of an emergency when air masks are deployed, you should always set up your own first. Why?  Because you can’t help others if you are dead. You have roughly 30 seconds to get your mask on.  Seems simple enough… yet.. there is a reason why the reminder is issued.

From the time we’re children we’re told not to think of ourselves first. We’re told its selfish. We’re told its disrespectful, but we are told all of these things without any context. We are told it in a very overly simplified way (probably because we are children) as if it is always 100% the best way to maneuver always. When we get older, and things graduate beyond sharing our toys, taking the last seat when someone else would benefit more from it… it gets forgotten sometimes to teach us that in fact, there are some situations in which our own clarity and well-being actually needs to be given more priority in order to be effective in what we do. You are able to give more and help more if you yourself are stable.

Put another way, you are far more able to help others find stability… if you have found it first.

I’m personally experiencing a down time. I’ve gotten into that rut.

The world is swirling around me with concerns and issues. Some mine, some my family and friends, some my communities, some my countries.  I’ve been feeling tapped out and pretty much felt suffocated, like I have no room to move or work. Limited resources to work with, and inability to be as productive as I feel I “should be”. Feeling like I’m barely getting by, and not accomplishing some needed things.

Truth is though… that is the story of everyone.

Even though I feel so spent.. truth is I need to admit to myself that I’ve not been doing “everything” I could, and a big part of that is because I’ve gotten in the habit of plain ignoring me.  If I’m to accomplish anything at all, I need to first make sure that I’m not “dead.”

This means that even though my husband’s health situation isn’t resolved, we actually have done work there. He is currently on medicines, he is figuring out his routines. The smart side of me knows that some of the things he says and does isn’t really about me or the kids at all. All the emotions and negativity when those times come… Its about how uncomfortable he is… uncomfortable with himself, with his place, with his sense of value. A good chunk of how we live this life is seated in how we choose to react and the attitudes that we allow ourselves to take on….. and in the end it doesn’t matter who around us, or what they say or do for us… we choose our willingness to change our own minds and our own situations. In the end I can’t do this for him.

I can be supportive, but not at the detriment of myself otherwise there may be a time where I can’t help him even a little. If I’m honest, I’ve been afraid to go get help for me, because it might take away from what he or the kids need… but if I don’t stop that, and begin to work some self care into that equation too.. then I won’t be able to help them even the little that I currently am able to.

So…

I’m going to the doctor today. Going to talk about this current issues I’ve been experiencing. Going to re-open the possibility of getting a new neurologist, and I’m going alone. This way the conversation doesn’t get hijacked to other’s issues. I’m better at hiding my issues, and seem to not be trustworthy enough to not let someone take focus off of me, I generally welcome it. Mostly because I get this horrible uncomfortable feeling and get super self conscious when I have to talk to someone about me. Give me any other topic… please.

Anyhow.. this is the plan..

 

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Sometimes you run because you have to. Because if you don’t then the worries you’ve been unable to deal with are able to catch up, and it kills you to let them. They eat away at your heart and soul, and you can’t allow that because if you do, there is no safety net. There is no backup support. There is no one else to shoulder this with, so you can’t allow them to catch you. You just keep pushing through, going a day at a time. Hoping and praying to the universe that it will all be ok if you can push a little longer…. but sometimes you stumble. Sometimes they do catch up, and they overtake you, and unfortunately, they have tonight, so I find myself unable to sleep and in tears in front of my computer. Typing away to try and get these feelings off…. to lay them somewhere else, because I’m already tired, but I still have to work in the morning.

You just keep pushing through, going a day at a time. Hoping and praying to the universe that it will all be ok if you can push a little longer…. but sometimes you stumble. Sometimes they do catch up, and sometimes they overtake you, and unfortunately, they have tonight. This is why I find myself unable to sleep for the last four hours and hopelessly in tears in front of my computer. Typing away to try and relieve myself of some of this pressure. Desperately wishing to get these feelings off of me….. to lay them somewhere else, because I’m already tired, but I still have to work in the morning. Tomorrow my eyes will be puffy, and I will once again likely blame allergies to people who care to ask why I’m a bit puffy, and I’ll feel bad to do that but the alternative is to explain too many things that they weren’t really in the position, nor wanting to hear in the first place… besides, the last thing I want or need is sympathy, because all it does is compound how inept I feel at not being able to manage and take care of those around me let alone myself.

How expensive peace of mind seems to be, and how odd it is that people are so opinionated on whether someone else “deserves” it or not. I sometimes wonder what it is you have to do to “earn” it? I’m at this point able to work full time and push through everything, but I still am not able to afford it. Its all I can do to keep this family of mine going in maintenance mode. Where just enough is taken care of to keep them fed, housed, and clothed, but not much more.

Deon’s troubles with Fibromyalgia and the chronic inflammation issues keep piling up. He falls more than twice a week, thankfully able to get himself back up after a bit… but what do I do when that is not the case? His medicines keep getting added to, and like me, only seem to be able to keep him in a maintenance mode… to where it keeps him somewhat stable-ish, but doesn’t resolve the pain or the issues he’s experiencing, just minimizes them. Don’t get me wrong, I’m thankful, and he is too, but it does get to him, and makes him chaotic and emotional, which makes him question everything, and I have no answers…. none at all. He should be going to specialists that we’ve been referred to, but honestly, they haven’t been helpful in the past, and at this point in “maintenance mode” there really isn’t the money to spend on things that don’t help. This sounds horrible of me to say, but I can’t afford it at the moment to continue to see Doctors who nickel and dime you without giving direction nor actual assistance.

My youngest son used to be a catcher for his baseball team. Now he mainly catches anything and every sickness possible. He gets the flu, or a cold so often that we got a letter from the “dropout” specialist warning us that we were reported to them because he has missed so many days. Luckily he is a self-driven student and he catches up in his classes pretty quickly, and once the teachers get around to grading everything, he is still somehow on honor roll. I’m not exactly sure what they want us to do.. send him in sick so he can infect others?  It usually takes a day or two and then he shakes it off, so we haven’t even been making Doctor appointments for him, we tend to wait a day or two… which drives me crazy with worry, yet I know “it will probably be alright”, so we wait first to see, because if we took him in each time, the co-pays alone would be an actual problem.

My older son, he is on this emotional roller coaster at the moment. It worries me because my coworker just lost her son of the same age to just that. I’m having a hard time getting thru to him, I don’t know that he ever really gets the lessons and coping strategies I’m trying to teach him, he gets caught up in the emotional part and just won’t talk to anyone about anything real. He covers it up with being silly, but I can see he’s actually weighed down internally. No clue if I’m handling things with him right or not, he’s so different from my other two. I would like to get him in to see a counselor and have them talk to him and give me any possible hints as to what I could do differently, because I don’t feel like what I’m doing is working, and I’ve not got much time left with him really. Not because I think he would do anything (course my coworker never thought it either), but mainly because he is going to be eighteen this year and released on the world, and I just hope he has the tools to grow the rest of the way and cope in a healthy way with what the world is.

When it comes to me, the truth is… I’m tired, and I hurt, and I’m kinda tired of hurting. MS has thrown at me all the off the wall and odd symptoms to which I have to try and weed through if something is serious or not… If I should try and get help, or wait it out in case it simply dissipates with sleep and quiet time or distraction.

I’m up this evening because I have this odd sensation on my neck, ear, and a small spot on the back of my head that the nerves are telling me that they hurt and itch like crazy. No bite that I can find, no odd rash or discoloration at all… yet its bad enough to interrupt my sleep and not let me be able to rest. Stupid I know, and I’ll do what I always do, but I worry. At some point, my normal measures may not be a “good enough” option.

I actually had to say no to my Daughter’s Mother’s Day offer of getting me a massage, because at the moment the skin on the left side plain hurts to be touched by anything other than clothes. I have to keep covered to find relief which makes the 96 degrees Fahrenheit days we’ve been having kind of tricky.  I wouldn’t have been able to handle it right now while this is going on.

Truth is that I’ve not even seen a neurologist in the past four years. I was referred to one last year, and they said they’d call me in six months and that was roughly eight months ago. I should be diligent… I should be advocating to get a new one as soon as possible. The reality is though that everytime I get one, they make me do tests that take three years to pay off, and they get nothing helpful out of them. They just tell me what I already know by simply living my life. That I’m decently stable compared to others with MS, and that if I want, I could go on medicines, but all it would do is play decoy to distract from other inflammation in my system, and “possibly” cause me to have “less” symptoms “IF” the MS was acting up. Not a sure thing though, kind of a gamble… oh and a side effect is feeling like you have the flu every day. I’ve been there, I’ve done that, it isn’t worth the gamble when at the moment I seem to be able to rest to minimize things… course I can’t rest right now. ><

It makes me question myself to always be in this “maintenance mode” of limping along… pushing a “little longer’… hoping that the universe allows issues with those I take care of, and with me to “just work out eventually.” till I get to the point where I actually can get things resolved.

In every other area of my life, I’m so pro-active. I plan, I figure out ways to resolve it now, adapt or move on… in order to keep going.

In this health care taking aspect, I seem to fail to be able to have that same nature and it’s really getting to me.

I should be getting Deon to a specialist to see what else could be done. I should be taking my youngest in more often to the Doctor so that we can figure out why he’s so susceptible to picking up sicknesses, and figuring out how we can help that. I should be getting my older son to a counselor so that he has someone to talk to since he can’t seem to open up to me without me constantly prying at him. I should not be waiting to get back under someone’s care for this MS….. but, in the world, we live in, that all requires money which I have just enough to just keep us getting by in this  “maintenance mode.”

All this talk about healthcare in the government right now, and honestly they are simpletons and nowhere near resolving this when the main priority they seem to focus on is on the existence of plans you could buy into, instead of the affordability of care needed in the first place. I have insurance, but right now it does me little good because I only end up being able to afford the occasional “maintenance” visits, but nothing further.

But it is what it is… and I’ll keep going as long as I can. I have work in two hours now …. it’s going to be a long day.

Admitting frustration relieves a bit of this, so maybe now I can shake it off, just hope the universe is kind in the level of severity it presents us with, and I’ll begin my run again.

I don’t run because I’m scared, because truly if the resources were there I’d be all over all of these things rather than doing a little for this one now, and a little for another next payday and so on.   I don’t think I run and try to avoid focusing too intently on these worries because I’m scared… I think I run in the hopes that I’ll reach a point where I’ll find what I need in order to just deal with them head on.

Hopefully, after getting this out I’ll be lighter and able to be faster than the worries for a bit. Hopefully, they won’t catch me and consume me again this way again for a little while longer. It’s time to go maintain this life as best I can… now… where were those running shoes?

 

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It is very possible that your life could be changed irrevocably by the simple occurrence that that someone didn’t see the instant worth of investing in someone else, who may have in turn then been able to help you when you really needed it.

Currency is the simple man’s understanding of value. It was created as an instant re-compensation for services acquired from people who lived outside of your community who you could not really barter with, because they might not be around later to repay a favor. Our downfall is not currency actually, because the human action of investing positively is not at all limited to money (no matter what we tell ourselves). Our downfall is our laziness and our impatience to be rewarded for the actions or services we provide others.

Sometimes art makes you think. To quote art.. “Human progress isn’t measured by industry. It’s measured by the value you place on a life. An unimportant life. A life without privilege” -DW

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Appreciate…

There are people in this life that are so warm in nature, that the sound of their voice makes your heart melt. The observance of their kindness leaves an impact, making you want to measure up. There are people in this world who you are very lucky to have ever met in chance because they inspire you to grow… to try, even when the challenge seems above your abilities.

Treasure these people as they are the best that human kind has to offer, and they don’t come along that frequently. One of these friends, is worth the entirety of any “friends list” you may have collected.

 

 

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Thoughts on PRENDA

RE: Prenatal Nondiscrimination Act(PRENDA) of 2017

H.R.147 – 115th Congress (2017-2018): Prenatal Nondiscrimination Act (PRENDA) of 2017

I totally get the moral high road regarding this, yet when it comes to being opinionated over abortion over all, I really don’t feel like it is my place to decide for someone else. Yes of course one would hope that these reasons would never be the “reasons” for wanting one, but what frustrates me honestly about this topic is that if it really were the reason for someone somewhere…. then outside people who would never ever be evolved in the development of that child — would rather decide that that child should instead live, but then suffer a lifetime in the environment of an “irresponsible and immoral” mother who didn’t want them but was forced to keep them.. or if they happened to not “keep them” then have those children live under the state and hope that they get adopted or something.

People seem to want to focus so intently on “abortion” itself because its a hot debate, yet no one seems to want to talk seriously about focusing instead on the things that could alleviate it in the first place. Laws like this won’t really help anything except make people who get offended that someone else somewhere may want an abortion… feel better because that person they likely don’t know — just “can’t”.

This law honestly is incomplete. Its not good enough. If people are pro-life, there needs to be provisioned better systems, made to be able to take care of these children first. If we aren’t serious about investing in these children’s actual lives, then we have no business being opinionated about the issue.

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Who is at fault really?

 

Overheard a conversation today. The homelessness in my area is increasing. The story I overheard was talking about people living in their cars at the local parking garage. People stepping over poop found on the ground nearby.  I listened to them talk about feeling for those people, but at the same time feeling for the other “normal” people who are just trying to work in that area.

I offered the comment that until we change our mentality about “how we help”, that the situation will remain.

Here is my position.

The reality is that we are always going to have people in our society who are either:

#1 Down on their luck / Going through a hard time to where they are unable to make things meet enough to keep  a roof over their head.

#2 Mentally impaired… again to where they are unable to keep things stable for themselves.

These people are always going to exist. If you don’t prepare your community to have situations where they can find help, or be helped, then you will continue to have people “with no place to go” present.  You can outlaw them, making their “being” criminal.. but when you do that, what positive thing are you actually doing?

You aren’t resolving the issue, you are just making it easier for people in better situations to not have to look at, or be as painfully aware that those less fortunate exist. You allow those more fortunate to stay blind to the fact that our societal dealings are not as well rounded and all inclusive as we like to think. That in reality there are whole groups of people whose sufferings, and in some cases, entire lives are being ignored. Devalued, because “they should try” to do better. We seem so free with our the “ought” judgments, but less able to handle admitting the root of real problems.

If you are not adamant at dealing with the reality of what is the root of a problem is, no matter how inconvenient or uncomfortable, then in my view your complaint has lost its credibility.

If your response is “they should just get a job”, or “they should be more responsible” then that to me means you have not investigated this issue enough. For some of these people, even those answers are either temporarily or permanently  beyond their capacity, and we can’t just pretend that people who are afflicted with with those issue don’t ever exist.

The reality is that the fact that they are collecting in public places trying to survive, simply means that it is an issue we have to dig deeper into as a society.

I beg the question. Who does homelessness really reflect badly on? Is it the people who are experiencing a current opportunity loss in taking care of themselves, or the society that allows it to happen, and encourages it to remain “out of sight?”

Symptoms of issues are just signs calling you to action. If you choose to ignore their pleas, you shouldn’t expect change or improvement.

The reality is, that if we valued systems that allowed for more self-sufficient and stable “hand up” situations that could help people needing assistance in rebuilding their lives we all would be better off. Things that would be more beneficial in resolving homelessness than by just passing laws saying they can’t sleep or be in a public area or by demonizing them and simply chalking it up to them being a “sub-par” human.

If we cared about public health care availability, to the point where there were places for sick and unstable to go regardless of how much money we could make off of them, then and only then is when we’d see valuable change.

Until we can divorce the meaning of value from being – how can I exploit this situation for my own benefit, to actually mean what healthy and lasting difference can I encourage in this situation.. then we won’t see improvement.

Sometimes issues are harder on us BECAUSE of the simpler ways of thinking we employ.

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