MS Anniversary…. a lot of changes

It was one year ago today that I was officially diagnosed with Multiple Sclerosis. As I look back, it is amazing to me all of the changes that has occurred since then.  Today is a medium day for me as far as symptoms go. I still consider myself very lucky as I think I am still doing pretty darn good for having MS.  Makes me feel guilty sometimes when I read some others blogs and experiences, but also makes me appreciate the blessings I’ve been given. God really is good. I pray that I continue to live on the “light” side of what MS has to offer.

Thinking back over the last twelve months though, I can still pretty vividly remember all variant  degrees of problems I’ve encountered, going from days with minimal symptoms – where I could almost forget I had the disease, to days where I very obviously limped around, to days where I couldn’t use or control my arms or leg(s). Headaches from you know where, vision and balance issues… all ever changing and liquid in both duration and severity.. It has been an interesting ride.

I’ve learned alot in the last year, not only about MS itself, but about myself. About priorities, about being kind to others by being kind to yourself. My family and I have taken on a total different approach to our diets. Food in general has become a whole other creature than it was a year ago. With the discovery of what severe allergies my son had to wheat/gluten, dairy and red meat and adjusting to that – which consequently made 98% of his issues with Psoriasis go away. To researching and learning dietary measures that other MS sufferers … (hmm don’t much like that term… scratch that.. lets say “MS survivors” instead) have done to minimize their symptoms.  I have been lucky in that I was able to quickly identify right off a very noticable difference in my symptoms when I avoided certain foods.I know others have had a much harder time in that phase of learning about their bodies allergies.

Food at our house is actually thought about now. We are not only pickier about what we allow into our bodies, but also just the revelation that food’s actual purpose is fuel for your body to function, not just comfort.  Not to say that we have got it mastered or anything, its always a challenge to find things that are ok, and anytime we have other people watch Haiden especially, it gets a little complicated, but we have gotten a litte better at it over the last year. While I sometimes miss the Ice Cream and cheese, and goodies from yester years…. I definately don’t miss the 60 lbs I’ve lost in the past year.  It has also made me very aware that alot of our nation’s poundage problem is more in food itself – both quality and portions., I know this because unfortunately I can’t say that its been diet and exercise for me…. I haven’t done much (closer to if any.. ><) exercise at all, and still relatively quickly shed pounds to where I am now, which has plateaued to a stable place now.

The girl that was deathly afraid of needles has learned to cope (somewhat). I still can’t stand to watch blood drawn, but I deal with the generally daily (when I’m good and don’t forget) injections of Copaxone.

I’ve learned what a “Specialty Pharmacy” is.  I’ve learned to have a pretty good description of what MS actually does, to explain to friends and family that sometimes get curious, and want to understand.

I’ve learned how important attitude really is. I now can very quickly associate the severity of some symptoms with the undertones of how I perceive my day. I fully respect (though don’t always obey) the importance of sleep, and just resting in general. Not only allowing your body to rest, but also in allowing your mind to relax as well. (Means not worrying about absolutely everything…. easier said than done! believe me! ) but important none-the-less.

All in all, as much as MS sucks, I have to admit that it has brought about some changes in my life that might have not otherwise occurred. I doubt I will ever be “thankful” for this disease, but I do appreciate the lessons I have learned because of it.  It really is too bad that we do are best learning from difficult experiences.. lol.

But as Deon told me when this all began a year ago.. our new family motto was changed to “Its all Good”. Because what happens, will happen, it’s not always in our control, but come “Heck” or highwater.. we will get through it together. I’m lucky to have my husband to walk with me through this. I appreciate the strength I’ve been given from him, from God, from my friends, and my family…  I love you all!

2 thoughts on “MS Anniversary…. a lot of changes”

  1. Serina,

    Happy Anniversary. Thank you for sharing such wonderful insight into the changes of your life over the past year.

    I’ve reached a point where I’ve got to make a change and believe that it needs to start with food. Just hearing about the effect food choices have made on you and your family is inspirational.

    It will be wonderful to see what blessings you experience in the coming year. Will be looking forward to following your adventures…….

  2. Very thoughtful. It sounds like things have been tough but that you have made some positive changes. I too am coming up on one year. I too have found some challenges but overall I also think I’m lucky. I too am slwoly learning the importance of rest.

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