I called my Neurologist this morning as I was scheduled to have an appointment tomorrow to follow-up with them on a test I he wanted me to take.
At the last appointment, I had candidly mentioned that we were avoiding bread at my house as my son’s doctor thought that part of his psoriasis was caused by an allergic reaction, and then made the observation that at that point I had noticed physically feeling better when I avoided it as well. So the Neurologist wanted me to take this test to see if I had “bread” allergy. I had asked him at the time, if it was necessary if I was going to be not eating it either way. He still thought I should have the test done. Because then “We’d know for sure” if I was allergic. I asked if my insurance would cover it, (because there have been a few things now that they didn’t) and he said I’d have to call and find out. In calling the insurance, I found that they only would cover a portion, and since I’m still trying to pay off earlier things, I decided this didn’t seem like something that “had” to be done right now, if at all. So I decided not to schedule the test.
I called this morning to figure out if I actually needed to come in to follow-up on my MS in general, or if the only reason was to go over the results of this test I didn’t take? My call to leave a voice mail with the nurse, accidently got hung up on, so I waited 30 minutes and called back. The second call, I was able to talk to the nurse who said she pulled my file, but then said she needed to put me on hold as she had to help a patient. … my call then got dropped again. So I waited 20 minutes this time before I called back.
This time I told the receptionist that I thought it might be a good idea to cancel the appointment for now, and I’d schedule a follow-up a bit later. She told me that the nurse was standing behind her, and that she wanted to talk to me.
The nurse gets on the phone, and I tell her that since I hadn’t taken the “bread” allergy test, then I was thinking that I might just cancel the appointment for today and reschedule something later.
She asked me: “Aren’t you still worried you might have MS?”
to which I responded “No, because the doctor already told me I have MS”
So then the nurse said: “But you really should come in and talk to the Doctor about medicines you could use to treat your MS”
I told her “I’ve been on Copaxone since April”
“Oh,” she says
“What is the normal time period for regular follow-ups if you aren’t actively having a problem?, I’ve actually been feeling decent a good portion of the time lately.” I asked
“You know that is how the disease works right? You will feel ok, then bad, then ok, then bad again?” she asked.
“Yep, I know” I answered.
“In that case you just want to make sure you have a follow-up with the Doctor once a year” she said.
“OK, Thank you” I responded.
In fairness, it was all information that I’m sure is important to convey to a newly diagnosed patient… however, It left me feeling uneasy about how much attention they actually give when looking over someones chart to have the nurse give advise. Or even worse.. How updated my chart really is? I have an image in my head of a file with my picture, my name, and “MS” stamped in bold letters across the top.. I know that sounds silly, especially since I know they never took a picture of me.. lol.. but seriously.. you’d think it would include the information of what I had, and what medicines I was on. Its not like it was just last week or something..
They Diagnosed me with having MS in March of this year, and started me on Copaxone the beginning of April. My last appointment with them was in May, and we fully discussed that I was taking the Copaxone shots daily. .. or pretty close to anyway (because I had missed a few days).
Just makes me wonder if at some point I had a bad reaction to the Copaxone, How quickly would the hospital be able to figure it out that was the problem?